“Compassion is an unstable emotion. It needs to be translated into action, or it withers. The question of what to do with the feelings that have been aroused, the knowledge that has been communicated. If one feels that there is nothing ‘we’ can do — but who is that ‘we’? — and nothing ‘they’ can do either — and who are ‘they’ — then one starts to get bored, cynical, apathetic.”
― Susan Sontag, Regarding the Pain of Others

 

flowercat3

In the last few days, I have read some comments on, one of the Migraine Support Groups, that worried me. Comments such as, their doctor had told them to start a new medication, but they hadn’t done so. For fear of the side effects, this was something they should have talked, openly and honestly with their doctor about, before leaving the office. If you have a migraine specialist who will not include you in your treatment plan, it is time for a new one. I will post a link at the bottom of this blog, that can help you find a migraine specialist near you.*
A couple of other comments, purely showed, plain apathy in regards to new information, not being at all excited about the new drug, CGRP, on the horizon. They would rather live in complacency, with the “if it isn’t broke don’t why fix it” mentality. Maybe for them their migraine regimen works just fine, but for thousands of us, that just isn’t so. For myself, it definitely isn’t, I’ve been in intractable migraine for several weeks. My cluster headache friends, continue to suffer greatly. As does my sweet friend Julie, with hemiplegic migraine and maintains the most awesome attitude, I’ve ever seen. My Amiga, kept pushing and pushing to find, the treatment for her intractable migraine. Glory be, she has finally found a treatment that is giving her, the first no pain and very low pain, days in years! 

Like the kitten and the flowers above, they need tender, loving, care, in order to survive and thrive! Each one of us need the same thing, as we make this journey with migraine. We need a good migraine doctor, who will work WITH us. Family and friends, to support us, a reputable source for up to date migraine information. We must never become complacent and think we know everything there is know about migraine. Because new information flows in all the time, read as much of it as you can! So you can survive and thrive! 

Lilac my Moms fave flower, Purple Power!

“Affirmations are our mental vitamins, providing the supplementary positive thoughts we need to balance the barrage of negative events and thoughts we experience daily.”
― Tia Walker, The Inspired Caregiver: Finding Joy While Caring for Those You Love 

Live with hope,
Roni

 

*  https://www.healthcentral.com/article/why-how-and-where-to-find-a-migraine-specialist