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“The human body experiences a powerful gravitational pull in the direction of hope. That is why the patient’s hopes are the physician’s secret weapon. They are the hidden ingredients in any prescription.” ~ Norman Cousins

The most important thing we need, as we journey through life with migraine, is a headache specialist who is willing to work with us, in formulating our treatment plan. Migraine by its nature and depending on the type and severity, of migraine you have, takes a lot of control, out of our lives. Being a part of your treatment planning, helps put some of that control back in our hands. You will also feel more hopeful, as you learn to advocate for yourself. If your doctor isn’t willing to work WITH you, it may be time to search for a new doctor. I will post a link at the bottom of this blog, of migraine and headache specialists, all over the US. You do have other options. 

I want to talk about my fabulous headache specialist and a little of the history, that brought me to him. I had been seeing a pain specialist, who is also an Oncologist/Hematologist. At the time he was also taking care of my newly diagnosed Iron Deficiency Anemia, that required iron infusions and blood transfusions. I had some blood work come back, that was really wacky. This led to me having to have my second bone marrow biopsy, yeah I’m lucky like! The results showed there was no iron at all in my bone marrow. Thus the reason for the anemia and the need for blood transfusions, since my hemoglobin dropped as well.
The hospital decided they wanted him, to devote all his time to just oncology/hematology, so I wasn’t able to see him any longer. The hospital had a neurologist coming from another hospital, so I was scheduled to see him. Let’s just say, they were the worst six months of my life. He stopped all the migraine medications I was taking at the time, one of them being Nardil an MAOI. Which you’re not suppose to stop cold turkey and started me on three other medication. That first week was horrible, my mood was all over the place, I would start crying for no reason, get angry while watching a TV show! My appetite fell to zero, I lost forty five pounds, in those six months. I ended up in the ER of the hospital he worked out of, when the ER doctor called him. He said he was no longer providing my care. This was the first I had heard of this, but it turned out to be a blessing! I was referred to my present doctor! 

During our very first visit, Dr. B wrote down the names of two medications and asked me, which I would prefer to try. Right then I knew, I had hit the jack pot! He doesn’t ever tell me to take a medication our supplement, without telling me why. He is very patient, compassionate and caring, he never lets my comorbidities or boat load of allergies, which make it more challenging, to treat me, bother him. Never once as he even hinted, that I’m too complicated for him. Believe me, this has happened to me before. Dr. B is soft-spoken, has a sense of humor and he always listens when I advocate for myself. We’ve been through some pretty hairy situation and his calm, steady presence, helped me get through them. When I started having signs of clinical depression, I reach out to him and Dr. B made sure I got the help, that I needed. When psych dropped the ball, Dr. B picked it up. I always leave each office visit, feeling hopeful!

“He is the best physician who is the most ingenious inspirer of hope.” ~ Samuel Taylor Coleridge

Live with hope,
Roni

 

https://www.healthcentral.com/article/why-how-and-where-to-find-a-migraine-specialist