“Wo! I feel good, I knew that I would, now
I feel good, I knew that I would, now
So good, so good, I got you
” ~ James Brown

For the first time in two years, I can say, I feel good! Getting out of a two-year cycle of intractable migraine, is like winning the lottery to me. Two years of never-ending pain that kept me in my cave, for about ninety percent of that time. The isolation was almost unbearable, without the support of my husband and my dear migraine friends, who encouraged me, through texts, phone calls, cards, special little gifts in the mail, on Messenger and on Facebook, I don’t know if I would have made it!

Definition of intractable ~ from Merriam-Webster

1 : not easily governed, managed, or directed

  • intractable problems

2 : not easily manipulated or shaped

  • intractable metal

3 : not easily relieved or cured

  • intractable pain

My last hospital stay changed all of this, I was inpatient August 6 through August 12. For this admission I asked about adding IV Steroids, along with the DHE Infusions I always get. I’ve always been very leery of steroids, my Mom had to take them after her kidney transplant and I saw what havoc they played on her bones. I know that long-term and short-term steroid use, are two different animals, but it was still very hard to get the imagine out of my head. When you see someone you love so deeply, suffer so horribly, that just doesn’t go away!

I did four days of IV Steroids, the side effects were not too bad. Hot flashes, mood changes, I cried very easily, stomach cramps, oral thrush and the worst for me nausea, even though I was getting IV Zofran. Being nauseous is more debilitating for me, than the head pain! I would have to lie very still, to keep my tummy more happy, thankfully I slept a lot. By Friday I could tell that I had made a turn, as bad as the nausea was, I would do IV Steroids again!

I feel like my old self before the intractable migraine, I am out of my cave, getting up and dressing like a normal person, jewelry and all. While I still have chronic migraine, I’m being realistic also, I know that I will have my bad days when the cave will be needed. But my hopeful brain, says never again for any long stretch at a time! So yes, I feel good!

“Wo! I feel nice, like sugar and spice
I feel nice, like sugar and spice
So nice, so nice, I got you” ~ James Brown

For your enjoyment, James Brown singing “I Feel Good”, feel free to bust some moves, I did!

 

 

Live with hope,
Roni